As I shared, Cooper first had a seizure on the 13th of October.  He had two more in less than a month, each the same but different at the same time.  The last being the most severe, he also had an MRI and EEG done to find out the underlying cause (if there was one they could find).

His last seizure was the night before the EEG, Alice was staying down in Nephi; which we are very grateful for since the seizure was pretty bad.  Once again he had been asleep for less than 30 minutes when the seizing started, the beginning was very similar to what had happened the other two times; but it quickly got worse.  He stopped breathing, and his lips turned blue followed by the rest of his face.  His body became still, and I started pounding on his chest.  I thought I had lost my baby, and I reacted without thinking.  It was only a couple of seconds until he started breathing again, and his lips turned a gray color.  It took about an hour for his color to come back in his face and lips.  It was very traumatizing for Spencer and me, Cooper just slept through it.  We took turns staying up with him, and getting sleep for ourselves.

The EEG went well, Cooper was like a zombie all day since he had to wake up at 4 and stay awake until the EEG began.  After the exam the neurologist prescribed Cooper some seizure medication.  He has been on it for a month and is finally up to full dose.

With no seizures for the month we thought that meant no more seizures, but he had another one last night.  This one was very similar to the last three, just much more mild.  He slept through this one again, but his face was the only thing seizing.  He also kept trying to roll over onto his other side, he was completely in control of his body.

I stay awake and watch him for an hour after he falls asleep to make sure he is alright.  My heart hurts for the things he has gone through in his life.  I wish I had the power to make it all stop, but it is reassuring to know that this pain had been felt by my Savior, and we will get through this!

Leave a Reply

Your email address will not be published. Required fields are marked *